HIV Data Privacy and Confidentiality: Legal & Ethical Considerations for Health Department Data Sharing

The paper provides a summary of findings from a ten-state legal and regulatory research project NASTAD conducted, focusing on the legal authorities and limitations for HIV data sharing and considerations for health departments to balance patient privacy protections with emerging data-sharing activities. The paper explores state variations in data-to-care activities, Medicaid data sharing, law enforcement data sharing, and research data sharing and includes ethical and legal considerations to address data advances that may be moving faster than legal changes (e.g., molecular HIV surveillance).

HIV Data Privacy and Confidentiality: Legal & Ethical Considerations for Health Department Data Sharing